Broken Heart

This week I've found myself extra emotional. I've broken down in tears on several occasions, something I don't tend to do around other people. Nothing huge is happening, there are just several smaller things that aren't working and they are taking a toll on my heart.

The main issue right now is my son at school. He is having a really hard time keeping himself and his emotions in check. He's lashing out at the other students, sassing his teacher and generally getting into lots of trouble. At first it made me mad. I marched myself into his classroom (I do teach right across the hall) and laid down the law to him. It worked..for the moment. Trouble was, the next day he was right back at it.

So between myself, his teachers and his therapists we set goals and rewards and stepped up our game. Didn't work. Might have even backfired a bit because once he realized he had lost his reward, he did not even try for the rest of the day. You can see where this is going....downhill fast!

So I'm researching, I'm setting up group meetings, I'm talking with G and trying my best to keep myself together. But inside I am crying for my baby. He is not a mean kid. He has a kind heart. He honestly loves his friends. But he is becoming "that kid". The one who kids won't sit next to because he hurts them. The one who kids don't want to play with because he gets too rough. The one whose name is on the board all the time. "That kid".

The other night during our bedtime rituals, G broke down in tears just sobbing. He held me so tight and said "Mama, I had such a hard day!" My heart broke into a million pieces. He knows he isn't doing the right thing but we are struggling with how to teach him. How to reach him in the moment. I honestly don't have any more tricks in my bag.

Today I was looking though some books and I came across one that I had tucked away and forgotten all about. It's called "Finding God in Autism" and it's a devotional geared for parents with autistic kids. Doesn't God know just when to have you 'come across' something that you need? Instead of reading one devotional, I read several days' worth, each spoke something to me. One though, really stuck out.

It begins with Isaiah 61:1 "He sent me to bind up the broken hearted."

Here is the devotional for that day.....

Bind up means to tie up, secure, to hold up or unite. So today we know Christ was sent from heaven to earth to hold us up. He came to unite us with him. It is good news that Jesus was sent to bind up the broken hearted. You and I had our hearts broken when we received our children's diagnosis. He brings us relief. Turning to Jesus is what starts the process of putting the pieces together.

Over the last seven years I have learned that autism is a battle. A battle that needs to be turned over to God. I need to hang onto God and let him lead...God always leads to victory. When I feel weary I am taking on too much of the battle myself; I need to step aside and turn it back over to God. Let Him fight for me. I do not need to spend my time fighting the enemy or see seeking victory. I need to spend more of my time seeking Christ. As I bind myself to His presence and trust God...he will carry our son to victory.

We need to let God heal any brokenness that is still in our hearts. When we allow Jesus to do what God sent Him to do, gather us up and mend our brokenness, faith in God returns.

You and I are trusting God to heal our children in our lifetime. That requires faith. We will be blessed when God chooses to reward our faithfulness. Our children will reap the benefits of what we practiced and dared to believe.

Remember, this battle of autism is really for God to battle. God is raising up many leaders to discover answers about autism. God is leading many top notched doctors, scientists and researchers to answers and truths about this disorder.God is assembling brilliant people to take the heat, dig trenches and be bold in searching for a cure.

As God lifts us up an unites us all, we will not only see the healing begin, we will feel it. God is holding us up with His nail scarred hands. I am sure you and I would just like God to heal our children through an instant miracle. But God is choosing most of us to walk the walk, talk the talk and learn the lesson of "walk by faith".

Today, spend some time memorizing the above verse. Think about how far God has already brought you and how your personal character is being challenged, molded and refined. God showed you His love by sending you His son to bind up your broken heart.


Thank you Father for sending Your Son to bind up my broken heart. Thank you for loving me enough to send your own Son to die for me...I'll not forget the sacrifice. I know your heart must have been broken too.

A friend of mine and I were talking the other day about our ex husbands. She's dealing with a 'deadbeat dad' situation so we often swap stories of the latest things happening to us and our children. She was recounting to me the events of the last week or so, where she has been unable to reach her ex husband and hasn't received any child support from him. She mentioned that after six months of this behavior, she could have his parental rights revoked.

"Sounds like heaven", those were my words. "Sounds like heaven", was the way I chose to express myself. What was I thinking? First, I just belittled my eternal home. Second, how could heaven be kin to a place where a dad doesn't take care of his child, love her enough to be around and add stress to the ex wife in the process? Knowing that this child loves her dad, is hurt when he cancels plans and wants to be part of his life.........seriously folks, someone should staple my mouth shut.

In my defense, I was just looking at this from my family's perspective. We have prayed to be left alone in this way. But my prayer and that of another family are two completely different things. My head knows this, I just wish it was conveyed to my mouth.

Father, help me say and do only things that would give You glory. Put your hand over my mouth when it is needed (which is often) and help me pray for Your will in all situations. Thank you for placing my friends in my life and help me to lift up their needs daily.

My Testimony

I was driving alone a couple of weeks ago and using the time to pray. I was arguing with God. Well I guess it's never really arguing because God doesn't have to argue, but I was acting like it. I was pleading with God again to deliver us from a particular situation. I'm begging. I'm telling God all the reasons why I need this miracle. Then I tell God how unhappy I am over this thing. I ask God about my witness and testimony. How can I be an effective witness for God's kingdom if I am not happy? How can I speak of how good God is when this terrible event plagues us? How can I show God' s love and kindness when we are in daily trials?

You know God had an answer. He always does. He reminded me how much MORE effective my testimony will be if I can be joyful in the face of this thing. He showed me how much MORE people will want to turn to Him if I proclaim His goodness even in the midst of the storm. He sent a song my way to encourage me that this earth is not my home...Heaven is. The things that happen now are nothing compared to eternity with Him.

How I am humbled.

My God took the time to hear me, remind me gently and help me put my feelings into perspective. He redirected my heart to Heaven...and isn't that the goal all along?

Breath

Yesterday was a strange day for us. We drove to the meeting place to exchange custody of G. When we got there, we discovered that his dad had a new (well old, but different ) car. After a few minutes of transition, G went to get into his dad's car. We discovered then that the seat belts wouldn't lock.

We discussed how they work, don't work, might work...but in the end I insisted on a locking clip. While G's dad wasn't happy about it, he wasn't upset either. He left me, his girlfriend, G and his grandson (my mom was in my car) in the parking lot while he went in the store to purchase one. He was gone for quite a while. His girlfriend decided he might not know where to look so she went in after him. I put both of the kids in my car and cranked up the air conditioning. They were having fun in the back seat playing with cars.

I saw G's dad come out of the store and stop to talk to a man on the sidewalk. He lit a cigarette. I thought he was just waiting on his girlfriend to come out. The next thing I know, my car is being surrounded by police cars. He had called the police, telling them I wouldn't let him have his son.

At this point I am totally bewildered. We hadn't had any unpleasant conversation. He wasn't mad. Nothing had even been said about me taking G away. The last thing I knew was that he was going into the store to buy the clip. We were just waiting.

I felt kind of sorry for the police officers as they dealt with this. G's dad was making less and less sense by the minute. He started telling a story to the officers that was completely untrue. Due to his actions on previous exchanges, I carry a tape recorder on my hip and record all of our discussions. I explained to the officers that I had it all on tape and would be glad to clear up any misunderstanding. The officers watched G's dad as he continued on about how I wouldn't let him have G.

The officers gave him three choices...1) go buy a clip or a new seat with a clip 2) have me drive G to his house or 3) send G home with me. G's dad responded that the store where we were didn't sell them. I offered to wait till he went to a store that did. He glazed right over that one.

Then the officer repeated choice number 2. Without even looking at me, G's dad said "she won't do that". My reply was that I would be fine with driving G there, but what would they do for the rest of the weekend??

The officer then asked if they had another vehicle. G's dad told them that his girlfriend had another car that they could drive. (She had just finished telling me it was in the shop). When I pointed that out, the lies just became thicker.

The officer repeatedly gave the choices...either go buy the proper safety equipment or let G go home. He told me I was free to leave at any time ( G was already strapped in to my car by this point). I waited. I'm not sure what came over me. I was shaking head to toe at the thought of yet another confrontation with this man but for some reason I waited.

He tried to tell the officers that I wouldn't give him back his grandson. I had only put him there so the boys could be cool and play while we waited. I helped E out of the car. The boys even exchanged toys as he got out. There was nothing I could do for that little guy but pray he would make it home safe.

I watched as he came around to tell G goodbye, tripped over his own feet and then wanted the officers to come to my car to look at my seat belts. He was stumbling, garbling words, and generally making his own case worse. It was like watching a train wreck.

As we left, I was shaking. G was confused. My mother was relieved. There is a cold, gripping fear that runs through me when we have moments like this. The uncertainty of events, the memories of past violence, the sadness of having not one, but two little boys witness scenes like this.

The fear runs through me like ice water. My mind jumps back and forth from memories to current events. I immediately think of what will happen next time. Will we go through this all again? Will he take out his hatred of me onto my baby? Why, oh why, is this fear a constant in our lives?

Later on last night, I was reading some posts from friends. Neither were aware of my day's events. One quoted Frank Herbert, "Fear is the mind killer. Fear is the little death that brings total obliteration. I will face my fear. I will permit it to pass over me and through me. And when it has gone past me, I will turn to see fear's path. Where the fear has gone there will be nothing. Only I will remain." (Thanks ECT for your post.)

Then next quoted the Bible, from Proverbs 29:25 , "The fear of man lays a snare, but whoever trusts in the lord is safe." (Thanks DEW for your post.)

How I needed to hear both of those. I thought over them last night. They were still fresh on my mind this morning as our preacher taught on chaos. He spoke about chaos taking over, running rampant, until there is nothing more we can see. He asked the question we might ask in such a situation....WHERE IS GOD IN THE CHAOS?

Hovering....God is hovering right above the chaos, ready to swoop in and change this situation. Ready to pierce the darkness we are in with His light. Ready to bring order to this chaos. God is so close to us that we can feel the moisture of His breath on us. He is in the business of moving in, just as we are about to give up.

God sees our chaos as raw building materials that He can use. Not only will He move in, he will bring order and then create something beautiful and vibrant out of our chaos. We are moments away from God saying "Let there be light" in that darkness in our lives.

Thank you God Almighty for protecting us. Thank you for chasing away the fear. Thank you for ordering my chaos. And thank you for shining Your light in the darkness. I can feel Your breath on me. It is the most glorious feeling in the world.

Time Flies.....

Wow, it's been awhile since I've written! Guess these are the lazy days of summer....except that ours hasn't been that lazy! We've vacationed to the beach, played in the pool, practiced sleeping in our own bed (who knew that would be so hard????), renovated a room, and saved our doctor and dentist checkups until now!

So here it is July, heading back to school is just around the corner, and so much has happened these last few months. G is reading 3 and 4 letter words very well. He's practicing his writing daily on some sort of paper or magazine in our house (thankfully he hasn't thought to attempt writing on the walls!). Just this morning he buttoned all of the buttons on his shirt while getting ready for church. He is growing and maturing by the minute.

A few weeks ago, we saw his developmental pediatrician who changed his diagnosis from PDD-NOS (Autism) to Asperger's Syndrome. Now I know that all of those fancy names for things still mean Autism. It's not gone. It rears its head at times when I least expect it. But still the change in wording made me feel good. It showed that other people are seeing improvement in G, just like I have. God is good.

Today during worship in church, I looked down to this handsome guy beside me and watched as he lifted his hands to God. Might have been mimic at what others were doing. Might have been just copycat behavior. But it might have been God at work in that little heart.

Each night we read a devotional at bedtime. G is understanding more and more of it. He's comprehending God's word. One of the most recent devotions was on anger. We deal with a lot of anger from his dad and this is hard for G to deal with also. We've talked about how to "be angry and sin not". Then today, we were heading to church when a man pulled up in the lane beside us and began shouting some FOUL words at the car behind him. The two men were shouting obscenities and threats...all within our earshot. G had a ring side seat for it. I was so glad when the light changed and we could pull away, but we could clearly see the car in front deliberately weaving to cut off the driver behind him several times. Now I had hoped that G would never hear some of those words he heard today but God used this as an opportunity for us to talk about it. G remarked that "daddy sounds like that sometimes", and lead us back to the verse "be angry and sin not". Only God can take something so foul and turn it into a learning opportunity.

Now as G is napping, I'm reading through some blogs I follow. One writer quoted Psalm 138:8, "The Lord will accomplish what concerns me" (NAS). Amazing. Purely Amazing.

Then I decided to look at some other translations of the same verse.

" The Lord will perfect that which concerneth me" (KJV)

"The Lord will fulfill his purpose for me" (ESV)

"The Lord will vindicate me" (NIV)

No matter which translation I read, each burns on my heart. Only God can accomplish, perfect, fulfill and vindicate a sinner like me.

God is good.

Summer Visit

This last week has been pretty tough. We've done so many things that left me feeling a bit like I'm on an emotional roller coaster. Our school held its graduation ceremony and end of the year activities yesterday. There was laughter and tears, saying goodbye to children and parents I have grown to love.

Then we've been dealing with the dreaded summer visit. The plan was for G to visit his dad beginning Thursday night and coming home on Tuesday. G has been upset for days over this visit. He makes comments about not wanting to go, he wants to stay at home, etc. On Tuesday night as he got into bed he cried over it. ALOT. He had some fears over not having a night light there and we quickly remedied that by putting one in his bag to take. But it didn't stop the fear and dread.

Then on Wednesday night as we were getting ready to go to bed, G dropped a toy on his foot. Now I know this hurt. His toenail immediately turned blue. No doubt that he was in pain. But after about half an hour of crying, screaming and all manner of melt down, it occurred to me that something else might be going on. When I did ask, he let loose even more. It all boiled down to the fact that he did not want to spend the night with his dad.

Well we did manage to get him on a positive track and by Thursday evening he was getting excited about the prospect of going to do some things like attending a birthday party. He was nervous getting in his dad's car but was ok. He said he wanted me to call the next night (something he usually doesn't ask for).

Now onto tonight...I called. He cried, begged and pleaded with me to come get him. "I want you Mama. I want to go home to my Mama's house!" He was sobbing so hard I could barely make out most of his words. I tried my best to calm him down, reassuring him of all the fun he would have. He would have no part of it. He decided that he'd rather come home than go to the birthday party, go camping or play with the relatives he only sees there.

The worst part was that his dad wouldn't give in. I told him I would come pick G up and bring him back the next morning if he still wanted to see G. Of course, he wouldn't hear of it. So I listened to my baby wail for me for over half an hour. I tried my best to comfort him . I tried my best to make him feel better, talking while tears rolled down my cheeks.

After the conversation ended, I prayed about this whole situation. I've told God I'm trying hard to trust in Him, to believe there is a purpose for all of this. I am trying to praise God no matter what, but it is so hard. Especially when it is my son who is hurting. That's got to be the worst pain of all.

God, in His wisdom, knew I needed some help. I came in to check my email and found this as part of a devotional. Only God could orchestrate this timing.

I hope this speaks to you as powerfully as it did to me........

The Most Difficult Prayer
by Phyllis Hobe

It may seem easy to pray in gratitude—until we come across Paul's words in Thessalonians 5:18: "In every thing give thanks" (KJV). I have looked up this verse in many translations and there is no way around it. Paul is telling us to be thankful for everything.

There are so many things for which I could not thank God, not if I were to be honest with Him. And for a long time I couldn't even approach this kind of thanksgiving prayer. How could I be grateful for death, disease, for human cruelty and selfishness, for all the pain in this world? No, I could not be. Yet my resistance troubled me. In every other way in which I prayed I had received God's love and blessings. I wondered, Am I missing something vital in my life by not being able to give thanks for everything?

Then one day when I was visiting a dear friend who suffers from crippling arthritis, she asked me to pray with her. In a voice weekened by chronic pain she began speaking to God. Here is what she said:

My Dear Lord,

My life hasn't been easy and you know better than anyone because I have called on You often for aid and comfort. I have asked You why You allow me to suffer so much. I did not begin my life knowing You but I have loved You for a long time now.

But this pain! It destroys the joy in my life and my ability to give joy to others. What can I do for You now, hurting as I am? Is there some way this pain of mine can be used for good? Can it be of value to my family who must look after me, as I looked after them?

O my beloved God, You are leading me to the place of thanksgiving, aren't You? I am beginning to see Your light in my darkness to see the blessings even in my pain. Although I am not as cheerful as I once was, I am compassionate. I am learning at this very moment that pain is not really my enemy. Pain is my teacher. I am being instructed in the art of sensing the hurt in life, and I trust that You will now let me learn how I can be a source of comfort to all those who suffer.

I am no longer angry, God, not at you and not at life. I may not move very well but You have increased my sensitivity. I thank You for that. And I thank You for the understanding that there is a purpose in all things. And You are there in all things. Thank You in the name of the Your suffering Son, whose example is now made clear to me. Amen.

My friend's prayer helped me to see that I can thank God for everything. It isn't easy. But is is good. And it is honest.

Walk for Grant

I am joining my first Autism Speaks walk this month. I borrowed this format from their web site and posted on the fridge at work to help raise money. I didn't know the effect it would have on people. I wanted to save it as a reminder, to myself and for my angel that I love so much!

WALK FOR AUTISM

I walk because you are my love bug, my only child, much prayed for, desperately loved. I walk because you are mine.

I walk because I am a teacher. I worked with children like you before you existed. Little did I know, I was training for our life together. I walk because I am your mother.

I walk because every single day you make me proud. You face your fears and don't even know it. You encounter sounds, smells ans sights that make your body uncomfortable, yet you continue on. I walk because you are brave.

I walk because you are a gift. You have made me a better person, a better teacher, a better mother. You look at things from another perspective and give me insight, never ceasing to amaze me. I walk because of who you are.

I walk in support of other families who do not have the support we are blessed with. There are families who do not know the signs, who do not know where to go, who think their child is just naughty. I walk for information.

I walk because I do not know why. I am afraid to have another child because I'm not sure if autism is because of your premature birth, our genes, the environment. I walk in search of knowledge.

I walk because there are 1 in 110 families who are dealing with what we do every day. It is not an over diagnosis. It is real and it is now. I walk for research.

I walk to make "our typical" possible. Your stimming, your honesty, your personality is a part of me. I must try and think ahead of you. I have become a planner, a dietician, and educator, a researcher, and advocate and an author of social stories. I walk because this is my life.

I walk because you are my hero and I love you!

Love, Mommy

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Join our team in walking, monetarily and in prayer as we strive to find a cure for autism. Come see me or visit www.autismspeaks.org and click on the "walk now for autism speaks" link in the lower left corner for more information.